Return-Path: <nifl-health@literacy.nifl.gov> Received: from literacy (localhost [127.0.0.1]) by literacy.nifl.gov (8.9.3/8.9.0.Beta5/980425bjb) with SMTP id QAA00482; Thu, 17 Feb 2000 16:33:36 -0500 (EST) Date: Thu, 17 Feb 2000 16:33:36 -0500 (EST) Message-Id: <3c.136526c.25dc46a6@aol.com> Errors-To: listowner@literacy.nifl.gov Reply-To: nifl-health@literacy.nifl.gov Originator: nifl-health@literacy.nifl.gov Sender: nifl-health@literacy.nifl.gov Precedence: bulk From: Avlahakis@aol.com To: Multiple recipients of list <nifl-health@literacy.nifl.gov> Subject: [NIFL-HEALTH:2176] Re: Consent and Confidentiality X-Listprocessor-Version: 6.0c -- ListProcessor by Anastasios Kotsikonas X-Mailer: AOL 4.0 for Windows 95 sub 39 Content-Transfer-Encoding: 7bit Content-Type: text/plain; charset="US-ASCII" Status: OR Dear Deborah, Congratulations on your Mission Health Lit project! I am looking forward to your website. As to your diabetes/confidentiality dilemma,I'm not sure that we know enough about what the debate is? Does your staff feel that the confidentiality of the learners or the tutors is at risk? Perhaps there would be less of an issue of confidentiality and consent if you re-designed your outreach to our tutors and tutees. Do you have meetings where a bunch of your tutors get together? If so, perhaps the medical student could explain her project at such a meeting, so as to save some time and labor. Also, calling people out of the blue at home can put some people off. As for tutors finding out whether or not their learner(s) have diabetes, perhaps the tutors could tell their learners about the diabetes packet project, framing it in the context of a medical student needing input from the people who would most likely use it. Then the tutor could ask if the learner knows anyone with diabetes who might be interested in looking at the materials. This way the learner can divulge their own condition if they want, or they might have a family member who might want to be involved. My experience in adult education is that students are more than willing to talk about health issues with which they are familiar. I don't think that they would consider such a project or inquiry such an invasion of privacy. And they are not obliged to participate. Perhaps I am being too simplistic? I wonder if the medical student might want to actually see how people engage with her packet, as this will let her know much more about its effectiveness? Hope this helps, it is a very interesting question. Sincerely, Alisa Povenmire
This archive was generated by hypermail 2b30 : Tue Jan 16 2001 - 14:42:57 EST