RE: [NIFL-HEALTH:3162] RE: Research on bringing a partner to medical appts

From: Beth Odom (bethodom@literacyaction.org)
Date: Thu Jul 05 2001 - 13:08:45 EDT


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From: "Beth Odom" <bethodom@literacyaction.org>
To: <nifl-health@nifl.gov>
Subject: RE: [NIFL-HEALTH:3162] RE: Research on bringing a partner to medical appts
Date: Thu, 5 Jul 2001 13:08:45 -0400
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Excellent points Karyn!  This is so true!
Additionally note, many patients do not tell their doctors (or anyone else)
that they possess low-literacy skills.  A companion who can take notes
and/or read informational materials about a diagnosis or condition and ask
relevant questions will be invaluable.

Elizabeth Odom
Literacy Action Inc.
Atlanta, Georgia

-----Original Message-----
From: nifl-health@nifl.gov [mailto:nifl-health@nifl.gov]On Behalf Of
Popham, Karyn
Sent: Thursday, July 05, 2001 11:34 AM
To: Multiple recipients of list
Subject: [NIFL-HEALTH:3162] RE: Research on bringing a partner to
medical appts


It is certainly a widely recommended practice in the patient education
community.

The companion can take notes, can serve as a check on what the patient
thought he or she heard, and can be a significant help to those who are
having communication difficulties because of age, infirmity, fatigue,
pain, or shock (e.g., from a diagnosis). They can also serve as a check
on the medical provider's tendency (present more often than one would
hope) to dismiss or denigrate questions (particularly when they come
from elderly women).

I can certainly vouch from personal experience that I or my sister
always go with my mother to significant medical appointments: we don't
attend her routine physical therapy or follow-up sessions, but you can
bet we're there when diagnosis or treatment decisions are made or when
she will be receiving instructions for tests or new medications.

I can also vouch from painful personal experience the value of having
someone there to take notes and--perhaps even more important--summarize
back to the doctor what he or she just said. Particularly when doctors
don't bother to put it in writing, such notes can be literally
life-saving. The doctor told me I had hepatitis. The doctor told me to
eat a high-protein diet. Either the doctor did not say or I did not hear
that it should also be a low-fat diet. I was a vegetarian. I lived on
peanut butter the next three months. My SGOT counts went through the
roof, and it's really rather amazing I lived through it. (This was back
in the early 70s. Even then, the mantra among business was "verbal
orders don't go: PUT IT IN WRITING". Medicine learns slowly: when was
the last time your doctor gave you any instructions in writing?)

Check PubMed for "Physician-Patient Relations" and particularly look at
Deborah Roter's work on patient-physician communication.

Cheers,
Karyn Popham
Houston, Texas

-----Original Message-----
From: Linda S. Potter [mailto:lspotter@att.net]
Sent: Tuesday, July 03, 2001 9:32 AM
To: Multiple recipients of list
Subject: [NIFL-HEALTH:3156] Research on bringing a partner to medical
appts


Could anyone provide references for published studies, or other
articles, on
the value of bringing a friend or family member to medical appointments?
In
other words, are two heads better than one?

Thanks very much.

Linda Potter
lspotter@att.net



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