[NIFL-HEALTH:3433] On the credibility of health literacy efforts

From: Dwyoho@aol.com
Date: Fri Oct 26 2001 - 15:57:09 EDT


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Subject: [NIFL-HEALTH:3433] On the credibility of health literacy efforts
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In a message dated 10/26/2001 1:16:32 PM Eastern Daylight Time, 
levesqjr@webster.edu writes:


> I seriously question
> however how Jane Doe, a woman with an eighth grade reading ability could 
> make a
> 

Congratulations, Jeri, on your good decision making and positive outcome.  
I'm sure that  a good deal of personal courage, and confidence in yourself, 
were also necessary in addition to all the other factors.  

I so appreciate your broadening this discussion beyond the problem of print 
materials,  and the suggestions you offered of valuable resources that many 
on the list will no doubt want to check out.

Your comments were a poignant reminder of how a lack of reading skills can be 
such a limiting factor in someone's life, even to the point of matters of 
life and death.

I just wanted to note your subtle implication that the "woman with an eighth 
grade education" should and could be helped to take charge of her health.  I 
fear that too often helpers give up way too soon and perhaps conclude, 
rightly or wrongly, that the patient just isn't capable of understanding all 
the nuances and choices involved in healthy decision-making.  If we assume a 
concensus at least among subscribers to this list that everyone should have 
access to understandable health information, it seems to me the next question 
is:  How far can we reasonably expect health care providers to extend, 
change, or initiate efforts to communicate with low literacy patients?  In my 
work as a literacy practitioner, I know that the main ingredient for success 
is personalized and timely attention to individual needs addressed through a 
true partnership of learner and instructor.  But as you eloquently 
illustrated, a partnership of doctor and patient is a rare occurence, for 
many reasons.  While I feel that we should advocate for better communication 
between physician and patient,  more and more I think we should also call for 
the hiring of health educators up and down the entire system, not just in 
public health clinics.  But I find this idea is often met with doubt that 
anyone but a doctor can be trusted to provide accurate health information.  
Yet we are long, long past the days when doctors were able to spend the time 
to get to know their patients and their families and work with them, rather 
than on them.  Plus,  I think the stigma suffered by low literacy patients is 
also often applied to those who genuinely struggle to work with them.  If 
these ideas ring true, what could be done to strengthen the legitimacy of the 
use of plain language strategies, even to the point where no self-respecting 
doctor would think to practice medicine without a communications specialist 
as part of the team?  

Deborah W. Yoho
Co-moderator, NIFL Health Literacy Discussion Group
Chief Executive Officer
Greater Columbia Literacy Council
921 Woodrow Street  
Columbia, SC  29205
803/765-2555   dwyoho@aol.com



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