[NIFL-HEALTH:4148] RE: Looking for volunteer CD reviewers

From: Martha Burton Santibáñez (mburton@nmdp.org)
Date: Tue Sep 23 2003 - 09:56:14 EDT


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From: Martha Burton Santibáñez <mburton@nmdp.org>
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Subject: [NIFL-HEALTH:4148] RE: Looking for volunteer CD reviewers
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Thank you!  Your packet is in the mail.

Martha

"Johnston-Lloyd, Linda (HRSA)" wrote:

> I would.... in English.
>
> Linda Johnston Lloyd, Public Health Advisor
> HRSA Center for Quality and Office of the Chief Medical Officer
> Room 7-100 Parklawn Building
> 5600 Fishers Lane
> Rockville, MD 20857
> 301-443-0831
> Fax 301-443-9795
>
> "The First Wealth is Health"
> Ralph Waldo Emerson
>
> -----Original Message-----
> From: Martha Burton Santibáñez [mailto:mburton@nmdp.org]
> Sent: Thursday, September 18, 2003 2:41 PM
> To: Multiple recipients of list
> Subject: [NIFL-HEALTH:4129] Looking for volunteer CD reviewers
>
> Hello everyone!
>
> I have (yet another) request of fellow listserv members...  My colleagues
> and I developed a bilingual (English/Spanish) audio CD this year, that
> provides basic information about unrelated blood stem cell transplants for
> patients who are considering the procedure(s) as a treatment option.
>
> We intended the CD to be a useful resource for patients and family members
> who:
> - Have limited literacy
> - Prefer to learn by listening
> - Speak Spanish as a preferred language, or
> - Are English language-learners
>
> We printed and distributed 2,000 CDs as a pilot project.  We've already sent
> out evaluations to staff at transplant centers and migrant health clinics
> throughout the country and feedback has been very positive.  We would like
> to add another dimension to our evaluation process, by having it reviewed
> from a health literacy/accessible language perspective.  Our hope is to
> refine the product before we print more, or add more languages.
>
> Each language is about 15-20 minutes long and is accompanied by a pull-out
> insert.  If you are interested in having a listen about a medical treatment
> that is probably unfamiliar to you, please call (612) 617-8336 or email me
> privately and I'll happily send you a packet to review.  Unfortunately, I
> have a limited number of CDs left, so it will be on a first-come,
> first-served basis.
>
> Many thanks,
>
> Martha Burton Santibanez
> Outreach Specialist, National Marrow Donor Program
> (612) 617-8336
> mburton@nmdp.org



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