Return-Path: <nifl-health@literacy.nifl.gov> Received: from literacy (localhost [127.0.0.1]) by literacy.nifl.gov (8.10.2/8.10.2) with SMTP id i59Emh915199; Wed, 9 Jun 2004 10:48:43 -0400 (EDT) Date: Wed, 9 Jun 2004 10:48:43 -0400 (EDT) Message-Id: <9E1CC884-BA23-11D8-A19A-00039381D39E@comcast.net> Errors-To: listowner@literacy.nifl.gov Reply-To: nifl-health@literacy.nifl.gov Originator: nifl-health@literacy.nifl.gov Sender: nifl-health@literacy.nifl.gov Precedence: bulk From: David Rosen <djrosen@comcast.net> To: Multiple recipients of list <nifl-health@literacy.nifl.gov> Subject: [NIFL-HEALTH:4450] Re: Prostate Cancer X-Listprocessor-Version: 6.0c -- ListProcessor by Anastasios Kotsikonas X-Mailer: Apple Mail (2.553) Content-Transfer-Encoding: 7bit Content-Type: text/plain; charset=US-ASCII; format=flowed Status: O Content-Length: 3588 Lines: 101 Sue, The prostate cancer booklet is terrific. I would like to suggest that you put this up in _accessible_ html so that people who are blind or who have specific reading disabilities can have the the Web page read out loud with a text reader. If you do, can you please let me know so I can let others know? Thanks. David J. Rosen djrosen@comcast.net On Wednesday, June 9, 2004, at 09:28 AM, Debbie Yoho wrote: > This messager is a repeat of a previous post from Sue Stableford, in an > effort to track down a technical problem. Please forgive if you > already > received it: (Debbie Yoho, moderator) > > This is a response to the inquiry from Barbara Lambiaso regarding the > project they are developing on prostate cancer prevention, screening > and > treatment. I am not writing to comment on a screening tool for limited > literacy, but to share an experience developing a plain language > booklet > about treatment choices for early stage prostate cancer and to direct > list > members to the treatment booklet. > > A colleague in the Clear Langauge Group, Janet Ohene-Frempong and I, > were > the plain language authors of a booklet about treatment choices for > early > stage prostate cancer developed collaboratively with the Michigan > Cancer > Consortium Prostate Action Committee. The group included physicians, > researchers, patient advocates and a graphic design team. We worked > long > and hard producing a piece that included all information essential for > informed patient decision-making at the easiest possible level. > > The final booklet is at an overall 7th grade level according to the Fry > readability formula. Several pages with necessary medical terms are > slightly higher. We found that it was not possible to create written > information that fully disclosed risks and benefits of treatment > choices at > a lower reading level. Ideally, the patient's physician will discuss > the > information, and offer the booklet as a review. The research team > continues > with the project, developing and assessing alternative ways of sharing > the > same information. > > The May 2004 issue of the Annals of Internal Medicine includes an > article > about why this new booklet was developed. (See: Fagerlin et al. > "Patient > Education Materials about the Treatment of Early-Stage Prostate > Cancer: A > Critical Review, pp 721-728) > > You can download the booklet at this web address: www.hsr.msu.edu. > Click on > "Making the Coice." > > The CDC distributes some fine plain language booklets about prostate > cancer > screening, a decision guide for the general male population and another > specifically for African American men. These can both be downloaded or > ordered from the CDC website under the title "Prostate Cancer > Screening." > > Print materials are certainly not a total solution to effective > communication, especially for adults with very limited literacy skills. > But, these booklets are a good start for many. > > Sue Stableford > Click on the booklet titled "Making The Choice." > > Sue Stableford, MPH, MSB, Director > AHEC Health Literacy Center > University of New England > 11 Hills Beach Rd. > Biddeford, Maine 04005 > Tel: 207-283-0170 ext 2205 > Fax: 207-294-5961 > email: sstableford@une.edu > Founding Member: The Clear Language Group (www.clearlanguagegroup.com) > > > Debbie Yoho > Moderator, NIFL-Health Listserv > Past-president, SC Adult Literacy Educators > Director, Greater Columbia Literacy Council > 2728 Devine Street Columbia, SC 29204 > dwyoho@earthlink.net 803-765-2555 > > >
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