[NIFL-HEALTH:4467] Fwd: Re: Which Test?

From: David Rosen (djrosen@comcast.net)
Date: Sat Jun 12 2004 - 11:01:38 EDT


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From: David Rosen <djrosen@comcast.net>
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Subject: [NIFL-HEALTH:4467] Fwd: Re: Which Test?
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NIFL-Health Colleagues,

I have had some conversation by e-mail with Dr. Terry Davis, the author 
of the REALM assessment, as a result of my posting.  He has kindly 
given me permission to share our exchange, so here it is.  To make it 
easier to follow here, I have put our e-mail messages in chronological 
order from top down.

David J. Rosen
djrosen@comcast.net


> > From: David Rosen [mailto:djrosen@comcast.net]
> > Sent:Tuesday, June 08, 20043:04 PM
> > To: Multiple recipients of list
> > Subject: [NIFL-HEALTH:4438] Re: Which Test?
> >
> > NIFL Health Colleagues,
> >
> > I have not seen the REALM before, so thanks, Carol, for the Web 
> page. 
> > Now that I have seen it, I am concerned.
> >
> > It is not clear to me what this assessment measures.  It doesn't
> > measure grade level, which is what it appears to report, and it
> >doesn't measure comprehension.  It appears to measure one's ability to
> > pronounce medical vocabulary.  I, for one can probably pronounce
> > hundreds of medical words which I do not understand the meaning of. 
> > And I know people who do understand the meaning of some medical words
> > but cannot pronounce them.  So, can someone explain what this
> > assessment does validly measure?
> >
> > I also have some concerns about administering literacy assessments in
> > medical contexts.  If someone comes in for medical help, isn't it the
> > institution's or agency's responsibility to provide medical help, not
> > to assess their literacy.  For example, at least one hospital 
> inBoston
> > does not bring up literacy, per se. Instead, patients with diseases 
> or
> > medical conditions are told "You have a disease that you need to 
> learn
> > about.  What ways would you prefer to learn about it?  Would you like
> > to talk with someone? Read about it? Watch a video?"  Patients who do
> > not choose to read may or may not have difficulty reading, but that
> > isn't the problem.  Especially a time of crisis is not the time to
> > confront problems of literacy.  The problem is how to help patients
> > learn what they need to in ways which work best for them.
> >
> > Others views on this?  Do you use the REALM?  How? Why?  Please help
> > me to understand the conditions under which it would be useful. Have 
> I
> > missed something?
> >
> > Thanks,
> >
> > David J. Rosen
>

> On Friday, June 11, 2004, at 11:59  AM, Davis, Terry wrote:
>
> > Concerning David Rosen's concerns:
> >
> > I saw your note about the REALM and thought I might shed some light.
> > The REALM is a reading recognition test and it does not give a
> > specific reading grade level.  It gives a grade range estimate. It
> > does not measure comprehension. The AMA is coming out with a textbook
> > on health literacy which will have a comprehensive chapter on
> > measurement of literacy in medical settings.
> >
> > There are many concerns about testing patients for literacy in a
> > clinical context. Most testing now is probably for research purposes.
> >
> > There are several studies in medical literature which have used the
> > REALM. Also reading the 1993 FAM MED article that introduces the 
> REALM
>
> > and gives detailed information about its development might be 
> helpful.
> >
> > Glad you are interested in literacy.
> >
> > Terry Davis
> >
> > Author of the REALM
> >
> > Terry C. Davis, Ph.D.
> >Professor of Medicine andPediatrics
> > LSU Health Sciences Center-Shreveport
> > 1501 Kings Highway
> > Shreveport,Louisiana 71130-3932
> > phone (318) 675-5813
> > fax (318) 675-4319

> From: David Rosen
> To: Davis, Terry
> Sent: 6/12/2004 5:50 AM
> Subject: Re: [NIFL-HEALTH:4438] Re: Which Test?
>
> Dear Dr. Davis:
>
> Thank you for your reply, and mention of the Fam Med article. I am not
> concerned about the REALM being used for research purposes as a
> screening instrument.  As it correlates well with the PIAT-R, WRAT-R,
> and SORT-R, if it is used as measure of a range of literacy, and as it
> is quick, I can see its usefulness, for example, in determining the
> appropriateness of participants for a focus group on health information
> materials, and possibly for other research purposes.
>
> The context in which it was raised, however, was as a screening device
> to determine the grade level of patients, presumably to determine if
> they needed special materials or referral to literacy programs. There
> have been several messages posted to the NIFL-Health electronic list 
> by health educators, literacy educators and by adults who have reading
> difficulties.  All raise serious concerns about the REALM and other
> tests being used for that purpose in a medical setting.  The concern
> from a patient perspective is that taking a literacy assessment in a
> medical setting is humiliating,  From a health educator perspective, it
> is a barrier for patients seeking health care.  From the perspective of
> some adult literacy educators, there is an additional concern: grade
> levels are not valid for adults.
>
> I will be interested to see the AMA textbook.  Can you tell me who the
> authors are?  Thank you.
>
> All the best,
>
> David J. Rosen
> djrosen@comcast.net


> From: "Davis, Terry" <TDavis1@lsuhsc.edu>
> Date: Sat Jun 12, 2004  9:24:20  AM US/Eastern
> To: 'David Rosen ' <djrosen@comcast.net>, "Davis, Terry" 
> <TDavis1@lsuhsc.edu>
> Subject: RE: [NIFL-HEALTH:4438] Re: Which Test?
>
>  Dear David
> Thanks for you letter. I agree w you about not putting up additional 
> barriers and being sensitive and curious about pts 
> feelings/experience  etc. 
>
> In talks I give around the country about literacy and health I do not 
> talk about testing. I focus on communication and education. In 
> developing/testing interventions I stress the importance of including 
> pts in the development and getting feedback from them. This will help 
> make sure these are useful for pts and that they "land" right.  
>
> Re the chapter : My co authors are Mark Williams, who among other 
> things helped develop the TOFHLA but has also moved on, Julie 
> Gazmararian and ELla  Kennen. Call  Joanne Schwartzberg of the AMA who 
> is the editor of the book for more info on when it is coming out etc. 
> 312  464 5355 
>
> Thanks for you sensitivity and curiosity.  Your questions obviously 
> stirred a lot of interest and concern .Good job! We need more of this 
> discussion with input from all 'stakeholders"
>
> Terry  
>  



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