[NIFL-HEALTH:4631] Re: "Easy-to-read" resources on the web

From: Audrey Riffenburgh (ar@plainlanguageworks.com)
Date: Fri Feb 04 2005 - 12:46:28 EST


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From: "Audrey Riffenburgh" <ar@plainlanguageworks.com>
To: Multiple recipients of list <nifl-health@literacy.nifl.gov>
Subject: [NIFL-HEALTH:4631] Re: "Easy-to-read" resources on the web
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Greetings, all,



In my ten years working in health literacy, I have seen a huge increase in 
materials on the web which are labeled as easy. There are SOME easy-to-read 
health resources on the web but many of the materials labeled as 
easy-to-read are still far too difficult for most of the general public. As 
you probably know, the average U.S. adult reads at about 8th "grade" level. 
Much of the material on the web that is labeled "easy" or "plain language" 
is written at much higher levels. (There are inherent problems in using 
grade levels to label adult readers but this gives you a general idea of the 
level of functioning vs. the literacy demands of printed materials.)



I recently analyzed the reading level of seven materials on, or linked to, 
MedlinePlus' "Easy-to-Read" area. The average reading level was 11 and the 
range was from 8 to 16. The results were similar for the FDA's website where 
they offer "easy" resources.



The problem is in defining "easy." What is easy to an average or lower 
skilled reader is entirely different from what is easy for those doing the 
labeling. So I suggest great caution in using materials labeled this way. 
They may not achieve what you are hoping for or assuming they will achieve.



Plus, keep in mind that there are dozens of factors beyond reading level 
that affect a document's appropriateness. These include organization, amount 
of information, whether the information is what the reader is looking for, 
approach, tone, design, layout, cultural appropriateness, and more. So even 
if the reading level is at 7th or 8th "grade" level, you cannot 
automatically assume the piece is going to work for the general public or 
readers with limited literacy skills.



Yours for better health in the U.S.,



Audrey Riffenburgh, M.A.
President, Riffenburgh & Associates
P.O. Box 6670, Albuquerque, NM  87197
Phone: (505) 345-1107 Fax: (505) 345-1104
E-mail: ar@plainlanguageworks.com
Specialists in Plain Language and Health Literacy since 1994
and
Principal & Founding Member, The Clear Language Group
www.clearlanguagegroup.com

----- Original Message ----- 
From: "Elizabeth Horvath" <Mhrsemh@omh.state.ny.us>
To: "Multiple recipients of list" <nifl-health@literacy.nifl.gov>
Sent: Friday, February 04, 2005 8:52 AM
Subject: [NIFL-HEALTH:4629] Re: Patient resources for phone


> One place to start might be MedlinePlus, they have a topic called Talking 
> with your Doctor:
>
> http://www.nlm.nih.gov/medlineplus/talkingwithyourdoctor.html
>
> I did not review the materials listed there for reading level, but you can 
> check the links and see if they have easy-to-read materials on the 
> individual websites.
>
> If you don't currently use MedlinePlus, do some exploring. If you click on 
> "health topics, there will be a button that takes you to "Easy to Read," 
> and you can check out the easy materials by topic. Unfortunately, "Talking 
> with your Doctor" is not among to choices.
>
> Beti
>>>> mburton@nmdp.org 02/03/05 02:37PM >>>
> Hi all -
>
> I am having a difficult time locating general information that helps
> patients advocate for themselves over the phone.  Getting the resource
> information to patients is the relatively easy part.  It's getting them
> to actually *call* and connect with the suggested resource that is the
> real challenge.
>
> I've found lots and lots of stuff to help healthcare providers
> communicate with their patients over the phone, but nothing to help
> patients communicate with their providers.  I do have a material that
> lists specific questions for patients to ask their health insurance to
> determine their coverage limits and what they need to write down, but it
> isn't generalizable to a broader context.
>
> Does anyone have something that could essentially "coach" patients with
> how to make an effective phone call to a resource/organization and how
> to document that conversation?  Maybe something similar to the "AskMe3"
> brochure?
>
> Thanks,
>
> Martha Burton Santibanez
> Outreach Specialist, Office of Patient Advocacy
> National Marow Donor Program
> www.marrow.org
> 1 (888) 999-6743 x8336
> 1 (612) 627-8195 fax
>
> Beti Horvath, MLS
> Library Services
> Mid-Hudson Forensic Psychiatric Center
> New Hampton NY 10958
> mhrsemh@omh.state.ny.us
> 845-374-3171x3625
> Fax 845-374-3171x4625
>
>
>
>
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