FYI, our health literacy experts may want to weigh in on this survey on
the campaign for Kernicterus
 
Gail Nielsen

________________________________

From: Martin Hatlie [mailto:info at p4ps.org] 
Sent: Wednesday, February 01, 2006 1:53 AM
To: Nielsen, Gail
Subject: Kernicterus Prevention Campaign Materials


   <http://www.p4ps.org/images/p4ps darker.jpg> 	
January 31, 2006

Subject:  Kernicterus Prevention Campaign Materials

Dear Colleagues:

I am writing to request your help in responding to and distributing
through your network a survey to assess reaction to new information
materials on the prevention of kernicterus. The survey is being
developed through a US Centers for Disease Control and Prevention (CDC)
funded project. Anyone can do this survey, as we are looking for
feedback from all stakeholders interested in neonatal health, patient
safety and effectively communicating messages about risk.

As many of you know, kernicterus is brain damage associated with
neonatal hyperbilirubinemia, commonly known as newborn jaundice.
Kernicterus injuries typically occur during the first week of life.
Because newborn risk for hyperbilirubinemia can be assessed through a
simple blood test and is highly treatable, kernicterus is one of the
National Quality Forum designated "never events" - an injury so
preventable it should never happen. Once believed to have been
effectively eradicated in the developed world, kernicterus re-emerged in
the United States and elsewhere in the late 20th century. System factors
contributing to its re-emergence may include earlier discharge from
hospitals after birth, a relaxation in routine neonatal blood testing,
over reliance on visual assessment of jaundice, the belief among health
workers that kernicterus is exceptionally rare or wholly eradicated,
failure to have early post-discharge pediatric follow-up, and failure to
educate new parents and their families about the fact that newborn
jaundice can cause brain damage.   

Posters about newborn jaundice are currently being developed in an
effort to improve information about jaundice for expectant parents and
people of child-bearing age.   We would like your opinion about which
poster ideas work best.The posters will be seen in hospitals, private
doctors' offices, and other healthcare settings where expectant parents
might visit. You can see some sample posters and give us your opinion
about them by clicking on this link:

www.captainsofindustry.com/survey
<http://www.captainsofindustry.com/survey> 

The survey will be live through Friday, February 10, 2006.  We
appreciate your taking the time to complete this survey and encourage
you to forward this link to your friends, family and colleagues so they
may also take the survey. Your participation is very important to the
success of these materials.

Thank you.

 <http://www.p4ps.org/images/marty-signature.gif> 

President, Partnership for Patient Safety

 

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