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[LearningDisabilities 791] Re: A view of learning disabilitiesfromaconsultant's prespective
Maureen Carro
mcarro at lmi.netThu Nov 30 16:18:39 EST 2006
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Andrea,
I agree...the programs with the best marketing strategies seem to be
the ones that get all the attention. I agree also that teacher
training is where the money should be spent. The programs without a
skilled and knowledgeable teacher are ineffective, while the skilled
and knowledgeable teacher can use any materials effectively. Amen!
On Nov 30, 2006, at 8:41 AM, Andrea Wilder wrote:
> Hi there,
>
> I haven't absorbed all of what you said, so let me take a little piece
> of it. The program ran for one summer, there were no reading gains.
> The funder withdrew support, that is, DID NOT WANT any further
> research done.
>
> With all these programs, I ask: WHO IS MAKING THE MONEY?
>
> My feeling: put the knowledge in the teacher, not in the program.
>
> Andrea
>
>
>
> On Nov 30, 2006, at 11:18 AM, Maureen Carro wrote:
>
>> Thank you Andrea, for the information about the Lindamood Bell
>> research. I knew their programs were involved in some research, but
>> had not heard of any findings. The one you are referring to sounds
>> like the LIPS program which is used to remediate phonemic awareness,
>> phonics, improve decoding/encoding skills etc. I know the periods of
>> intervention on these research projects is not too long, and
>> therefore , I suppose it is understandable that improvement is seen
>> in specific areas, but may not show a "generalization" to reading
>> after such a short time. In my own personal experience, it takes
>> years sometimes before "everything kicks in" for fluent reading with
>> good comprehension. I like the LIPS program for its "phonemic
>> awareness components", but shift to other methods once that
>> underlying skill begins to develop. The exercises I do are with
>> sounds only, no letters. Mental manipulation of sounds is an
>> underlying skill shown to be fundamental to reading text. Lots of
>> games here!
>>
>> Lindamood's Visualization and Verbalization program is the one that
>> is used as an intervention for reading COMPREHENSION, specifically to
>> improve visualization. I am wondering if that has been used in any
>> reseaerch. Anyone out there know?
>> In my opinion, however, there are other factors that may be
>> interfering with a student's ability to comprehend. With a HS
>> student, such as Maureen's son ( subject of another discussion
>> topic), I would certainly investigate that along with other things
>> that may be impeding his comprehension. He appears to already be a
>> good decoder. I often use Google Images to seek out pictures of
>> people and objects in a historical setting so students might better
>> visualize how the characters might look, dress, etc. and what
>> specific objects look like that they have never seen. I call this
>> "clarification" and teach them to do it for themselves when they read
>> rather than just "blitzing" by. HS students need to learn how they
>> can help themselves! The Lindamood V_V program is very structured,
>> and may be a good start for some. There are a number of other
>> strategies to enhance comprehension.
>>
>> Reading is such a complex task! This is a good reason why a good
>> diagnostic assessment is necessary to pinpoint areas of deficit, but
>> ALWAYS, the goal is reading text to enjoy and learn something new!
>> That takes COMPREHENSION. I try in every session to close with at
>> least a short literary piece even if I am mostly working on decoding
>> (because that is the deficit). The student needs to know WHY they
>> are doing all this!! I find that many students who are poor decoders
>> still comprehend very well what is read to them!
>>
>> On Nov 30, 2006, at 7:12 AM, Kohring, Aaron M wrote:
>>
>>> Andrea,
>>>
>>> I wonder if the MIT researcher's study focused on the same issue
>>> I've seen in some classrooms- where the concentration is on the
>>> decoding and is not contextualized. In other words, students spend
>>> lots of time decoding words out of context and not connecting it
>>> back to real text and building comprehension.
>>> ??
>>> Aaron
>>>
>>>
>>> From: learningdisabilities-bounces at nifl.gov
>>> [mailto:learningdisabilities-bounces at nifl.gov] On Behalf Of Andrea
>>> Wilder
>>> Sent: Wednesday, November 29, 2006 5:24 PM
>>> To: The Learning Disabilities Discussion List
>>> Subject: [LearningDisabilities 782] Re: A view of learning
>>> disabilitiesfromaconsultant's prespective
>>>
>>> All--
>>>
>>> I need to clear something up. I know about Lindamood-Bell
>>> techniques. I have listened to a researcher here at MIT who ran a
>>> study one summer, at the request of the company that makes
>>> Lindamood-Bell materials, or has a hand in their distribution. The
>>> finding was that students increased in their ability to distinguish
>>> individual sounds, but this increase did not generalize to reading.
>>> Any reactions to this? I believe the researcher, absolutely, but in
>>> what ways does the program increase literacy skills in children? Any
>>> reactions from the field? Observations?
>>>
>>> Thanks.
>>>
>>> Andrea
>>>
>>>
>>> On Nov 29, 2006, at 4:19 PM, Lucille Cuttler wrote:
>>>
>>>> May I suggest that the right question is to ask what teaching
>>>> approaches have been used thus far to remediate comprehension
>>>> difficulties? Does the student know how to ask questions about the
>>>> material? Is the obhjective to make a diagnosis merely for the
>>>> sake of diagnosis? Or is the objective to improve comprehension
>>>> skills. If the latter, then you will find a search of catalogs
>>>> from Academic Therapy and EPS. Qualified tutors trained and
>>>> certified in Orton-Gillingham and Lindamood Bell will be helpful.
>>>> Lucille Cuttler
>>>>> -----Original Message-----
>>>>> From: learningdisabilities-bounces at nifl.gov
>>>>> [mailto:learningdisabilities-bounces at nifl.gov]On Behalf Of maureen
>>>>> Sent: Sunday, November 19, 2006 5:09 PM
>>>>> To: The Learning Disabilities Discussion List
>>>>> Subject: [LearningDisabilities 778] Re: A view of learning
>>>>> disabilities fromaconsultant's prespective
>>>>>
>>>>> Thank you for your reply. It was helpful and did answer some of
>>>>> my questions.
>>>>> I have an additional question for all of you out there. Does
>>>>> anyone know of standardized test which will identify a reading
>>>>> comprehension problem which is extreme but does not show up on the
>>>>> "typical" tests. My son scores at grade level on most tests
>>>>> because he can process and integrate small chunks of information.
>>>>> I need to show that he has a problem with integrating, processing,
>>>>> and therefore comprehending information which is in more "real
>>>>> life" situations, such as reading a book of any kind. He cannot
>>>>> complete an assignment that is just two pages long because
>>>>> although he can "read" the words very well, he cannot interpret
>>>>> what he's read, find the themes, etc. If anyone knows of such a
>>>>> test, please let me know. His neuropsychologist is looking for
>>>>> such a measure too.
>>>>> Thanks,
>>>>> Maureen
>>>>>> ----- Original Message -----
>>>>>> From: Judith Sinclair
>>>>>> To: The Learning Disabilities Discussion List ; RKenyon721 at aol.com
>>>>>> Sent: Saturday, November 18, 2006 11:53 AM
>>>>>> Subject: [LearningDisabilities 777] A view of learning
>>>>>> disabilities from aconsultant's prespective
>>>>>>
>>>>>> Hello, Miriam, Josh, Maureen, and all members of this wonderful
>>>>>> list:
>>>>>>
>>>>>> I could not help but be impressed with the personal stories you
>>>>>> have shared about your own experiences with learning
>>>>>> disabilities, and your sensitive descriptions of inherent
>>>>>> problems and possible solutions. For many years I have worked
>>>>>> with individuals with learning disabilities as an educational
>>>>>> consultant and advocate, and continue to do so today as part of
>>>>>> my professional activities. Consequently, I have learned a great
>>>>>> deal about the effect of learning disabilities from people who
>>>>>> have them, including how it affects their lives and the lives
>>>>>> of those around them. In essence, the effect leaves no one
>>>>>> out—not the members of the affected individual’s family, school
>>>>>> system, or community. The inherent issues and ramifications are
>>>>>> often complex. So to help, here are just a few things I would
>>>>>> like to share, if you have a moment.
>>>>>>
>>>>>> 1. From my own observation, many learning disabled people go
>>>>>> through most if not all of their school and career lives never
>>>>>> knowing that they are learning disabled. This occurs often
>>>>>> because of their ability to compensate, that is, to adjust their
>>>>>> thoughts and behaviors to social and other needs in their
>>>>>> everyday lives so that the problem(s) is obscured. For example,
>>>>>> a child may not be able to read, but will pretend to read, thus
>>>>>> risking the attendant poor grades. An adolescent with an
>>>>>> undiagnosed hearing loss may effect a certain stance, not out of
>>>>>> style but in an effort to hear better. An adult may see him or
>>>>>> herself as a “slow reader,” yet for a variety of reasons not be
>>>>>> consciously aware of an actual disability.
>>>>>>
>>>>>> 2. What may appear at first to be an individual’s learning
>>>>>> disability may in reality be some other kind of learning
>>>>>> difficulty, or it may be that the person has a learning
>>>>>> disability as well as some other mental condition. For an
>>>>>> accurate diagnosis, the individual’s condition must fit the
>>>>>> accepted criteria and characteristics for this diagnosis (see the
>>>>>> Diagnostic and Statistical Manual of Mental Disorders for the
>>>>>> exact criteria). Students may be delayed in learning for other
>>>>>> reasons, including environmental. For example, children
>>>>>> suffering from abuse are unable to process information
>>>>>> efficiently, yet often display signs indicating “special needs”
>>>>>> or a learning disability.
>>>>>>
>>>>>> 3. Many people who are diagnosed as learning disabled fail to
>>>>>> get a complete report of their true condition, thus limiting
>>>>>> their chances for a full life. For example, an individual may be
>>>>>> diagnosed with a reading problem, yet in the interests of time
>>>>>> and/or money and/or facilities the examiner fails to notice/test
>>>>>> for a hearing loss, as well. This situation appears to be most
>>>>>> prevalent with the assessment of children, who often are unaware
>>>>>> of an additional disability or too reticent to report it.
>>>>>>
>>>>>> 4. In my experience, learning disabilities are not transient in
>>>>>> nature but permanent, in that while they may be addressed early
>>>>>> they never really go away. Left untreated and without adequate
>>>>>> personal compensation, the condition may worsen. Consequently,
>>>>>> the earlier and more complete the assessment and diagnosis, the
>>>>>> better. However, not only early assessment but constant
>>>>>> monitoring and management are essential. Developmental changes
>>>>>> along an individual’s life path must be considered at each
>>>>>> appropriate time, and revised or possibly new solutions examined
>>>>>> to prevent regression.
>>>>>>
>>>>>> 5. Learning disabilities are not simply a cognitive
>>>>>> manifestation, as is sometimes thought, for evidence of the
>>>>>> problem(s) presents in the learning disabled person’s social,
>>>>>> emotional, psychological, and spiritual expressions, even though
>>>>>> the individual’s learning disability problems have been diagnosed
>>>>>> and theoretically dealt with. In sum, learning disabilities
>>>>>> affect every aspect of an affected individual’s life. In my
>>>>>> opinion, it is always a good idea to have a learning disabled
>>>>>> person evaluated fully for the presence/absence of other
>>>>>> problems, and treatment available for all additional diagnoses,
>>>>>> and for all aspects of the presentation (see below).
>>>>>>
>>>>>> 6. In my experience, the frustration encountered by almost all
>>>>>> learning-disabled people who have average or above-average
>>>>>> intelligence as they attempt to reach their life and career goals
>>>>>> is incalculable. This diagnosis along with the constant need for
>>>>>> compensation and adjustment serves so many times to keep the idea
>>>>>> of the disabilities or the disabilities themselves at the
>>>>>> forefront of the affected person’s mind. Consider, for example,
>>>>>> the individual with a reading LD. While he/she may have been
>>>>>> diagnosed early and treated successfully, the core of the problem
>>>>>> itself remains part of the person’s life. The person may know
>>>>>> how to adjust for their diagnosed dyslexia, but is still fully
>>>>>> aware that he or she has this condition and must constantly
>>>>>> compensate for it. This awareness sometimes prevents people from
>>>>>> following their dreams and pursuing their goals, because they
>>>>>> have in mind that despite all measures of relief they are somehow
>>>>>> tainted. This is especially true in a society that prizes
>>>>>> perfection and excellence above all else.
>>>>>>
>>>>>> 7. There are various treatments available for people with
>>>>>> learning disabilities. These include the relatively well-known
>>>>>> and accepted forms of therapy, medication, family and community
>>>>>> support, and school intervention. I have also found that people
>>>>>> with learning disabilities profit from the experience of working
>>>>>> one of one with a learning disabilities professional who
>>>>>> understands the full implication of the diagnosis, and can work
>>>>>> with the individual to set impressive yet realistic goals, and
>>>>>> implement manageable strategies to reach them. For example, a
>>>>>> young person with a reading disability who wants to become a
>>>>>> lawyer needs to know that there are provisions for learning
>>>>>> disabled people now in some law schools that will provide the
>>>>>> services and structure required of a law program. This person
>>>>>> also needs to become acquainted with lawyers who have succeeded
>>>>>> and who are also in some way learning disabled.
>>>>>>
>>>>>> 8. Most K-12 schools today typically provide some learning
>>>>>> disability services in the form of classes, tutorials, and so on,
>>>>>> depending on the individual student’s diagnosed needs. And most
>>>>>> colleges and universities offer similar services, although I have
>>>>>> found that this assistance varies from place to place across the
>>>>>> board. However, despite laws to the contrary, there remain at
>>>>>> all levels institutions that seem to flatly deny the existence of
>>>>>> any condition that could be called a learning disability.
>>>>>> Indeed, these institutions insist that the diagnosed student is
>>>>>> instead lazy, disorganized, mentally disturbed, and so on. This
>>>>>> is an unfortunate condition, and if encountered requires delicate
>>>>>> management and/or outside help.
>>>>>>
>>>>>> 9. Most K-12 schools also offer some form of learning disability
>>>>>> assessment. Herein lies the rub, as they say. The diagnosis
>>>>>> provided may or may not be accurate and complete, two factors
>>>>>> that must be present if proper and adequate treatment is to be
>>>>>> given. All too often I have seen the diagnosis of a student left
>>>>>> to someone who was not properly trained, lacked cultural and
>>>>>> social sensitivities, was not fully aware of what the label “LD”
>>>>>> meant to the student now and in the future, and/or had certain
>>>>>> biases toward segments of the population. Parent have often
>>>>>> complained that the school provided diagnostics were unfair,
>>>>>> incomplete, and or inaccurate, and it has been just as often my
>>>>>> unfortunate experience to find that the parents were right.
>>>>>>
>>>>>> What are the options? If the parents can afford it, there are
>>>>>> outside testing facilities for students of all ages that can
>>>>>> provide appropriate, complete, and accurate assessments of a
>>>>>> student’s level and category of LD. It is important to find out
>>>>>> in advance, however, how reliable these institutions are, and
>>>>>> whether they are fairly priced as viewed by the wider community.
>>>>>> If the parents cannot pay much or perhaps at all, they are left
>>>>>> to the mercies of outside agencies, both for-and non-profit.
>>>>>> Here again the outcomes may be on the mark or less than
>>>>>> desirable. I have seen both good and poor results. But testing
>>>>>> is merely part of the equation, and only initiates years of work
>>>>>> ahead. Sometimes parents can proceed on their own successfully,
>>>>>> and sometimes not; it depends on their work schedules, attitudes,
>>>>>> other demands, personal problems and health, for example.
>>>>>>
>>>>>> Hiring individual help may be a good idea, if, and I emphasize
>>>>>> the “if,” a qualified educational consultant and advocate can be
>>>>>> found. Both of these characteristics must be present: the person
>>>>>> you select should be an experienced and educated professional,
>>>>>> one who has worked extensively in the school system, and knows
>>>>>> how the system really works. In addition to knowing and
>>>>>> providing the precise method of approach to the schools to obtain
>>>>>> the desired goal, the consultant must also have in their heart
>>>>>> the ability to champion the rights of the student. I say this
>>>>>> out of my own experience over many years, as I witnessed both
>>>>>> good and bad consultants and advocates hired by concerned, often
>>>>>> desperate parents seeking help for their children. The good ones
>>>>>> worked wonders. They were knowledgeable, articulate, analytical,
>>>>>> and prepared. The bad ones caused havoc and pain. They were
>>>>>> short-sighted, lacked enough education and preparation, and let
>>>>>> the school system run rampant over the case.
>>>>>>
>>>>>> What should you look for in a good educational consultant and
>>>>>> advocate? As I began above, both the ability to perceive the
>>>>>> real problems in each case, and not just the ones provided by the
>>>>>> school system and family, and the real solutions to each case,
>>>>>> that is, what in realistic terms can be done within and without
>>>>>> the system to help each child. Each case is as varied as the
>>>>>> colors of the rainbow, a good consultant knows, and each case
>>>>>> requires full concentration, adequate education and preparation,
>>>>>> professional manner, adequate time, and a firm, fixed agenda.
>>>>>>
>>>>>> In terms of fees, I have seen perfectly decent people working for
>>>>>> as little as $50 an hour, and I have seen people who should never
>>>>>> have been allowed near the case charging $400 an hour and more.
>>>>>> There seems to be no rhyme or reason to the pricing, and often it
>>>>>> is what the community will bear. Here in the Washington, DC
>>>>>> metro area most consultants and/or advocates charge from $100 to
>>>>>> almost $1000 per session, with more for special services,
>>>>>> depending on what they advertise they can do for you and your
>>>>>> youngster. Amazing but true.
>>>>>>
>>>>>> What you want to look for is someone you like and trust, first,
>>>>>> so that the time you and your child spend with them will be
>>>>>> production. You also want someone who is educated in the field
>>>>>> and can prove it, and someone who will spend time with you as a
>>>>>> parent, your child as a student, you and your child as a team,
>>>>>> the student’s school, the school’s administration, the school
>>>>>> system administration, the many meetings that are inevitable,
>>>>>> available resources and alternatives, available treatments and
>>>>>> options, and access to potentially necessary extended help. It
>>>>>> is also a good idea to know if the person works with any lawyers
>>>>>> who specialized in education law, “just in case.” While you may
>>>>>> or may not need, ultimately, to seek counsel, it is always a good
>>>>>> idea to have “on tap” a name or two of law firms that you have
>>>>>> already checked out.
>>>>>>
>>>>>> I would recommend that you explore all of this before deciding
>>>>>> anything. I would also suggest that you try to work out an
>>>>>> agreement on an hourly basis, with a letter of contract that lets
>>>>>> you out of the relationship if you find out that the person is
>>>>>> not working out. If they insist on a retainer larger than 5
>>>>>> hours of their time on an hourly basis, or if they ask for all
>>>>>> the money up front, or any other large money arrangement, after
>>>>>> deciding whether their reasons were sound, I would perhaps look
>>>>>> elsewhere. There are many very good educational consultants and
>>>>>> advocates who do have fair rates and who are more than happy to
>>>>>> assist you.
>>>>>>
>>>>>> I hope this information is of value to you, and that you will
>>>>>> contact me with any questions you might have.
>>>>>>
>>>>>> All best,
>>>>>>
>>>>>> Dr. Judith Peyton Sinclair
>>>>>>
>>>>>>
>>>>>> Contact information:
>>>>>>
>>>>>> Judith Peyton Sinclair, PhD
>>>>>> Cognitive Psychologist and Educator
>>>>>> Life and Career Management Services Consultant
>>>>>> Telephone 202-364-3893
>>>>>> www.sinclairsystem.com
>>>>>> j-p-sinclair at worldnet.att.net
>>>>>>
>>>>>>
>>>>>> ----------------------------------------------------
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>>>> andreawilder at comcast.net.-------------------------------------------
>>>> ---------
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