Hi Christy,
Unfortunately, the NICHHD LD Centers do not provide these resources.  
The centers' main focus is conducting research projects related to LD.  
So, they are at the far end of the research to practice spectrum.  
However, some of the centers are conducting research that is seeking 
participants from the community, so, some community members do benefit.  
You will find links to the centers (when available) on our website.  In 
addition, the Dyslexia Research Registry is conducting nationwide 
research www.fsuld.org/dylsexia_registry

In terms of teacher and family education and research dissemination, the 
Florida Center for Reading Research does provide these services through 
on-line resources.  Any one may access their website to learn more about 
what research does say about teaching individuals to read.  You may wish 
to look at their website www.fcrr.org

I just want to add, I think the points you make are quite valid.  As I 
talk to families around the country their biggest concerns seem to be:
1. How can we get an appropriate assessment/diagnosis for our family member?
2. How to I get my school to provide the appropriate education and 
accommodations?
3. How do I find out what is an appropriate and effective education for 
my family member?
4. How do I find out about accommodations and technology?
5. How do I get extra tutoring for my family member?

I have found the following to be the most helpful resources on these topic
The International Dyslexia Association www.interdys.org
Great Schools www.greatschools.net  -  in particular the reports that 
were originally written by Schwab Learning
Wrights Law www.wrightslaw.com  -  this site provides special education 
law and advocacy

_Parenting a Struggling Reader_ by Susan Hall and Louisa Moats
_Overcoming Dyslexia_ by Sally Shaywitz

Your message brings up an important issue.  Communities need to pool 
their resources to make "shopping" for family members with dyslexia 
easier.  I would be interested to hear about any communities that have 
done this.

Keep up the good work,
Megan

Christy Breihan wrote:

> In Milwaukee, our public school system, despite its many dedicated

> teachers and staff, is performing dismally. I teach the adults who were

> failed by that system. Many of them have children who have the same

> learning difficulties their parents have and are not having their needs

> met any better.

>

> Several educators have pointed to the absence of resources and support

> services for families and teachers of people with learning differences

> in our area. I am among those who believe that a center offering

> diagnosis, support, teacher and family education, research

> dissemination, and product exposure could make a  big difference in our

> community.

>

> Do these four centers provide these things? If so, is there any data to

> demonstrate a positive effect on their communities?

> Christy Breihan

> ABE Instructor

>

>   

>>>> <RKenyon721 at aol.com> 09/19/08 10:42 AM >>>

>>>>         

>  

>  

> Hi all, 

>  

> This is a reminder  about our List's next guest discussion scheduled 

> for 

> Monday, September 22 and Tuesday, September 23, 2008.  The title of the 

> discussion will be The Dyslexia Research Registry: Making the 

> Difference in Reading  

> Research!  Dr. Megan (Dixon) Bakan, Research Associate, Florida State 

> University, will be our guest  speaker.   

> If you have any questions to ask  the speaker in advance based on the

> outline 

> below, please post them either  before Monday or at any time on Monday

> and  

> Tuesday. 

> The discussion information  follows:  

>  

> Outline for the  Discussion 

>  

> I. What are the 4  regional Learning Disability Centers (see below) 

> funded by the National  Institutes of Health and what are they funded to

> do? 

>  

> Florida Learning Disabilities Research Center 

> Richard  Wagner, PhD, Florida State  University 

>

>

>

> Northeast  Learning Disabilities Research Center 

>     Laurie  Cutting, PhD, Kennedy Krieger Institute, Baltimore, MD   

>

>

>  

> Colorado Learning Disabilities Research Center                          

>      

>                         Richard Olson,  PhD, University of  Colorado   

>  

> Texas Learning Disabilities Research Center                             

>      

>                                Jack Fletcher,  PhD, University of 

> Houston 

> Questions  for Consideration Leading Up to the Discussion 

>  

> A.  What is the purpose of the regional Learning Disabilities  Centers? 

> B. How  do they function? 

> C. What  specific services are offered to adults and children with 

> undiagnosed or  diagnosed dyslexia through the  Learning Disabilities

> Centers?

>  

>

> II. What is the Dyslexia  Research Registry (DRR)? 

>  

> Questions  for Consideration Leading Up to the Discussion 

>  

> A.  What is the DRR’s relationship to the LD Center at Florida State 

> University? 

> B. How  does the DRR facilitate research in the understanding of 

> dyslexia? 

> C. How  does the DRR recruit families who have a child with severe 

> reading disabilities and who would like to  participate in studies of  

> dyslexia? 

> D. What  opportunities do families receive to learn about each research 

> project and then to  participate? 

> E. What  opportunities are there for educators and other professionals

> to be 

> involved in reading research and assessing  individual’s reading related

>  

> skills? 

> F. What assessments are  used by the DRR? 

>  

> III. What past  research has come out of the Dr. Richard Wagner’s  Lab?

>  

> Questions Leading Up to  the Discussion 

>  

> A.  Who is Dr. Richard K. Wagner and what is his role with the  DRR? 

> B. Why  is more research needed to understand  dyslexia? 

> C. What  aspects of reading development have been the focus for 

> research? 

> D. What  aspects of reading have been researched by Dr. Wagner’s  lab? 

> E. What tests have been  developed to assess  dyslexia? 

> F. What  intensive remedial instruction for children with severe reading

>

> disabilities is being  provided? 

> G. In  the past decade, why has there been a greater understanding of 

> how 

> children and adults learn  to read and why some individuals have  the 

> difficulty learning to  read? 

>  

> IV. What are the  current research projects underway on gA.  What genetics research is now being  done? 

> B. How  do the family environment and heredity each play roles in 

> genetics? 

> C. Is  research looking for a ‘dyslexia gene?” 

>  

> V. What resources  are available for your information? 

>  

> VI. Conclusion 

>  

> Please share this  announcement with your colleagues and those

> interested in 

> this important topic. In order  to benefit and participate in the

> discussion, 

> subscription to our free Learning Disabilities  Discussion List is

> required. 

> Subscription can be completed at 

> _http://www.nifl.gov/mailman/listinfo/Learningdisabilities__ 

> (http://www.nifl.gov/mailman/listinfo/Learningdisabilities_)  

>  

>

>  

> Thank you, 

>  

> Rochelle Kenyon,  Ed.D. 

> Moderator, NIFL/LINCS Learning  Disabilities Discussion List 

> Center for Literacy Studies at  the University of  Tennessee 

> _RKenyon721 at aol.com_ (mailto:RKenyon721 at aol.com)  

> 321.637.1319 

>

>

>

>

>

> **************Looking for simple solutions to your real-life financial 

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> Email delivered to bakan at psy.fsu.edu

>

>   


-- 
Megan M. Bakan Ph.D.
Florida State University
Department of Psychology
Room 418B
1107 W. Call Street
Tallahassee, FL 32306-4301
FSU Office (850)644-4563
Toll Free: 1-866-290-2456
Home Office (850)216-0510

The Dyslexia Research Registry
Improving Reading, Improving Learning, Improving Lives
www.fsuld.org