Has to have an emotional impact.

OK--WHAT ARE ASSESSMENTS  THAT LIST MEMBERS HAVE USED OR FOUND  
USEFUL?  I am definitely shouting this, as we don't have an answer  
yet--any answers at all.

Andrea:)

On Sep 30, 2008, at 3:59 PM, McGilloway, Susan wrote:


> I would like to address a somewhat different perspective regarding

> learning disabilities. I would like to hear comments from those on the

> list serve regarding the emotional impact that having a learning

> disability has on a person's life. The learning disability not only

> impacts a person's life academically, but psychologically and

> emotionally. It has a significant impact on one's self esteem and life

> adjustment to name only two.

>

> -----Original Message-----

> From: learningdisabilities-bounces at nifl.gov

> [mailto:learningdisabilities-bounces at nifl.gov] On Behalf Of

> Sandman-Hurley, Kelli

> Sent: Thursday, September 25, 2008 12:49 PM

> To: The Learning Disabilities Discussion List

> Subject: [LearningDisabilities 2346] Re: [SPAM?] Reminder: Discussion

> Begins on Monday, Sept. 22nd

>

> I would like to add a resource that might help with some of these

> questions that Megan posed:

>

> I just want to add, I think the points you make are quite valid.  As I

> talk to families around the country their biggest concerns seem to be:

> 1. How can we get an appropriate assessment/diagnosis for our family

> member?

> 2. How to I get my school to provide the appropriate education and

> accommodations?

> 3. How do I find out what is an appropriate and effective education  

> for

> my family member?

> 4. How do I find out about accommodations and technology?

> 5. How do I get extra tutoring for my family member?

>

> When you visit the www.interdys.org, please look for your local

> branches. Most have their own website and they have a plethora of  

> local

> resources and that can help you answer some of these questions.

>

> Kelli

>

> -----Original Message-----

> From: learningdisabilities-bounces at nifl.gov

> [mailto:learningdisabilities-bounces at nifl.gov] On Behalf Of Megan  

> Bakan

> Sent: Thursday, September 25, 2008 8:18 AM

> To: The Learning Disabilities Discussion List

> Subject: [LearningDisabilities 2342] Re: [SPAM?] Reminder: Discussion

> Begins on Monday, Sept. 22nd

>

> Hi Christy,

> Unfortunately, the NICHHD LD Centers do not provide these resources.

> The centers' main focus is conducting research projects related to LD.

> So, they are at the far end of the research to practice spectrum.

> However, some of the centers are conducting research that is seeking

> participants from the community, so, some community members do  

> benefit.

> You will find links to the centers (when available) on our  

> website.  In

> addition, the Dyslexia Research Registry is conducting nationwide

> research www.fsuld.org/dylsexia_registry

>

> In terms of teacher and family education and research  

> dissemination, the

> Florida Center for Reading Research does provide these services  

> through

> on-line resources.  Any one may access their website to learn more  

> about

> what research does say about teaching individuals to read.  You may  

> wish

> to look at their website www.fcrr.org

>

> I just want to add, I think the points you make are quite valid.  As I

> talk to families around the country their biggest concerns seem to be:

> 1. How can we get an appropriate assessment/diagnosis for our family

> member?

> 2. How to I get my school to provide the appropriate education and

> accommodations?

> 3. How do I find out what is an appropriate and effective education  

> for

> my family member?

> 4. How do I find out about accommodations and technology?

> 5. How do I get extra tutoring for my family member?

>

> I have found the following to be the most helpful resources on these

> topic

> The International Dyslexia Association www.interdys.org

> Great Schools www.greatschools.net  -  in particular the reports that

> were originally written by Schwab Learning

> Wrights Law www.wrightslaw.com  -  this site provides special  

> education

> law and advocacy

>

> _Parenting a Struggling Reader_ by Susan Hall and Louisa Moats

> _Overcoming Dyslexia_ by Sally Shaywitz

>

> Your message brings up an important issue.  Communities need to pool

> their resources to make "shopping" for family members with dyslexia

> easier.  I would be interested to hear about any communities that have

> done this.

>

> Keep up the good work,

> Megan

>

> Christy Breihan wrote:

>> In Milwaukee, our public school system, despite its many dedicated

>> teachers and staff, is performing dismally. I teach the adults who

> were

>> failed by that system. Many of them have children who have the same

>> learning difficulties their parents have and are not having their

> needs

>> met any better.

>>

>> Several educators have pointed to the absence of resources and  

>> support

>> services for families and teachers of people with learning  

>> differences

>> in our area. I am among those who believe that a center offering

>> diagnosis, support, teacher and family education, research

>> dissemination, and product exposure could make a  big difference in

> our

>> community.

>>

>> Do these four centers provide these things? If so, is there any data

> to

>> demonstrate a positive effect on their communities?

>> Christy Breihan

>> ABE Instructor

>>

>>

>>>>> <RKenyon721 at aol.com> 09/19/08 10:42 AM >>>

>>>>>

>>

>>

>> Hi all,

>>

>> This is a reminder  about our List's next guest discussion scheduled

>> for

>> Monday, September 22 and Tuesday, September 23, 2008.  The title of

> the

>> discussion will be The Dyslexia Research Registry: Making the

>> Difference in Reading

>> Research!  Dr. Megan (Dixon) Bakan, Research Associate, Florida State

>> University, will be our guest  speaker.

>> If you have any questions to ask  the speaker in advance based on the

>> outline

>> below, please post them either  before Monday or at any time on  

>> Monday

>> and

>> Tuesday.

>> The discussion information  follows:

>>

>> Outline for the  Discussion

>>

>> I. What are the 4  regional Learning Disability Centers (see below)

>> funded by the National  Institutes of Health and what are they funded

> to

>> do?

>>

>> Florida Learning Disabilities Research Center

>> Richard  Wagner, PhD, Florida State  University

>>

>>

>>

>> Northeast  Learning Disabilities Research Center

>>     Laurie  Cutting, PhD, Kennedy Krieger Institute, Baltimore, MD

>>

>>

>>

>> Colorado Learning Disabilities Research Center

>>

>>                         Richard Olson,  PhD, University of  Colorado

>>

>> Texas Learning Disabilities Research Center

>>

>>                                Jack Fletcher,  PhD, University of

>> Houston

>> Questions  for Consideration Leading Up to the Discussion

>>

>> A.  What is the purpose of the regional Learning Disabilities

> Centers?

>> B. How  do they function?

>> C. What  specific services are offered to adults and children with

>> undiagnosed or  diagnosed dyslexia through the  Learning Disabilities

>> Centers?

>>

>>

>> II. What is the Dyslexia  Research Registry (DRR)?

>>

>> Questions  for Consideration Leading Up to the Discussion

>>

>> A.  What is the DRR's relationship to the LD Center at Florida State

>> University?

>> B. How  does the DRR facilitate research in the understanding of

>> dyslexia?

>> C. How  does the DRR recruit families who have a child with severe

>> reading disabilities and who would like to  participate in studies of

>> dyslexia?

>> D. What  opportunities do families receive to learn about each

> research

>> project and then to  participate?

>> E. What  opportunities are there for educators and other  

>> professionals

>> to be

>> involved in reading research and assessing  individual's reading

> related

>>

>> skills?

>> F. What assessments are  used by the DRR?

>>

>> III. What past  research has come out of the Dr. Richard Wagner's

> Lab?

>>

>> Questions Leading Up to  the Discussion

>>

>> A.  Who is Dr. Richard K. Wagner and what is his role with the  DRR?

>> B. Why  is more research needed to understand  dyslexia?

>> C. What  aspects of reading development have been the focus for

>> research?

>> D. What  aspects of reading have been researched by Dr. Wagner's   

>> lab?

>> E. What tests have been  developed to assess  dyslexia?

>> F. What  intensive remedial instruction for children with severe

> reading

>>

>> disabilities is being  provided?

>> G. In  the past decade, why has there been a greater understanding of

>> how

>> children and adults learn  to read and why some individuals have  the

>> difficulty learning to  read?

>>

>> IV. What are the  current research projects underway on gA.  What

> genetics research is now being  done?

>> B. How  do the family environment and heredity each play roles in

>> genetics?

>> C. Is  research looking for a 'dyslexia gene?"

>>

>> V. What resources  are available for your information?

>>

>> VI. Conclusion

>>

>> Please share this  announcement with your colleagues and those

>> interested in

>> this important topic. In order  to benefit and participate in the

>> discussion,

>> subscription to our free Learning Disabilities  Discussion List is

>> required.

>> Subscription can be completed at

>> _http://www.nifl.gov/mailman/listinfo/Learningdisabilities__

>> (http://www.nifl.gov/mailman/listinfo/Learningdisabilities_)

>>

>>

>>

>> Thank you,

>>

>> Rochelle Kenyon,  Ed.D.

>> Moderator, NIFL/LINCS Learning  Disabilities Discussion List

>> Center for Literacy Studies at  the University of  Tennessee

>> _RKenyon721 at aol.com_ (mailto:RKenyon721 at aol.com)

>> 321.637.1319

>>

>>

>>

>>

>>

>> **************Looking for simple solutions to your real-life  

>> financial

>> challenges?  Check out WalletPop for the latest news and information,

>> tips and

>> calculators.

> (http://www.walletpop.com/?NCID=emlcntuswall00000001)

>>

>> ----------------------------------------------------

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>> To unsubscribe or change your subscription settings, please go to

> http://www.nifl.gov/mailman/listinfo/learningdisabilities

>> Email delivered to bakan at psy.fsu.edu

>>

>>

>

> --

> Megan M. Bakan Ph.D.

> Florida State University

> Department of Psychology

> Room 418B

> 1107 W. Call Street

> Tallahassee, FL 32306-4301

> FSU Office (850)644-4563

> Toll Free: 1-866-290-2456

> Home Office (850)216-0510

>

> The Dyslexia Research Registry

> Improving Reading, Improving Learning, Improving Lives

> www.fsuld.org

>

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>

>

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